De quoi se faire un sang d'encre pour les pays pauvres

Report on the Annual Global Survey 2010 includes selected demographic and other data on people with hemophilia (PWH), von Willebrand disease (VWD), other rare factor deficiencies, and inherited platelet disorders throughout the world. The purpose of this report is to provide useful information to hemophilia organizations, hemophilia treatment centres (HTCs), and health officials involved in efforts to reduce or prevent complications of bleeding disorders in order to assist with program planning. Methodology In 1998, the World Federation of Hemophilia (WFH) began collecting information on hemophilia care throughout the world. This survey, called the WFH Global Survey, collects basic demographic information, data on resources of care and treatment products, and information on the prevalence (the percentage of the population affected) of infectious complications such as HIV and hepatitis C (HCV). The WFH compiled the first survey report in 1999. Each year questionnaires are sent to national hemophilia associations linked with the WFH with the request that they in turn work with physicians or health officials, as necessary, to complete the survey. The WFH reviews completed questionnaires for inconsistencies, which are clarified where possible by communicating directly with the participating organization. The 2010 survey is the twelfth WFH survey. This report uses data for the years 2006, 2007, 2008, 2009 and 2010. Not all of our members are able to report every year. A list of participating countries and their data year can be found on page 11. The survey includes data on more than 250,000 people with hemophilia, von Willebrand disease and other bleeding disorders in 106 countries. Data from the WFH questionnaire are supplemented with data from other sources in order to provide a general socio-economic picture of each country surveyed. The survey questionnaire is included at the end of this report. Comments on the graphs The graph showing the increase over time in patients

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